Local 2090 Member James LaSante emailed the Local asking any interested members to come participate or donate to The Congenital Heart Walk in Bethpage State Park. Here is his letter:
My son, Gavin was 1 month old when he was diagnosed with a coarctation of the aorta (which is a narrowing of the main artery from the heart) and a bicuspid aortic valve (which is a fusion of two of the three leafs that make the door of the heart valve that can damage the valve over time.) The coarctation caused high blood pressure, pale skin and poor circulation in his body but mostly in his legs. When he was 3 months old he underwent surgery to repair the coarctation at the Phyllis and David Komansky Center for Children’s Health for medical and surgical care at New York Presbyterian hospital. He is now 9 nine months and doing great. His bicuspid valve will have to be monitored all through his life.
Coartations and bicuspid valves are a kind of congenital heart defect. Most people are unaware that Congenital Heart Defects (CHDs) are the most common birth defect in America, affecting approximately 1 in every 100, or 40,000 newborns each year. CHDs are responsible for one third of all birth defect-related deaths and sadly 20 percent of children who make it through birth will not survive past their first birthday. Although a child is born every 15 minutes with a CHD, research continues to be grossly under-funded in America. Of every dollar the government spends on medical funding, only a fraction of a penny is directed toward congenital heart defect research. Many adults can be walking around with some sort of CHD without even knowing it.
My family choose to help support The Children’s Heart Foundation to help others become aware CHDs and help other families going through this same or similar situation. As the country’s leading organization solely committed to CHD research funding, The Children’s Heart Foundation dedicates itself to bringing health, hope and happiness to children and families impacted by a CHD.
The Congenital Heart Walk – Long Island will take place on Saturday, May 14th at Bethpage State Park in Farmingdale, NY. Registration will begin at 9:00 am, with the walk kicking off at 10:00am. The event will include entertainment, giveaways, refreshments and the opportunity to meet others in your community affected by CHD. It truly will be an inspirational day of caring, sharing and fun!
This exciting joint effort by the Adult Congenital Heart Association and The Children’s Heart Foundation will take place in 20 communities across the U.S., including right here in the Long Island region. During this national initiative, thousands of teams, walkers and runners will join together to support the millions of children, adults and families who have been touched by congenital heart disease.
My family and I would like to thank the NYDCC and the staff at the Carpenter’s benefits office for their help and support during that trying time. We also extend our thanks to all those who have donated and plan to donate for this great cause.

URL to Donation page for Gavin’s Hearties:
http://congenitalheartwalk.kintera.org/faf/donorReg/donorPledge.asp?ievent=463889&lis=1&kntae463889=333D1FAF2F60439EA514595DC48E797A&supId=321518319]
URL to congenital heart walk-Long Island home page:
http://congenitalheartwalk.kintera.org/faf/home/default.asp?ievent=463889&lis=1&kntae463889=333D1FAF2F60439EA514595DC48E797A
URL to home page for Children’s heart foundation
http://www.childrensheartfoundation.org/